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|Posted by Kay Mawson on October 30, 2018 at 7:10 AM||comments (0)|
Unfortunately, the Charity Commissioner turned us down for a charitable status, but they also gave us the chance to re-apply so we've done just that and are sitting tight. It took 6months to receive the first reply. I have a feeling it will be as long again. I feel that the application is more comprehensive and meets the Legal requirements of what a charity is so please keep your fingers crossed for us.
|Posted by Kay Mawson on May 2, 2018 at 8:10 AM||comments (0)|
Sorry to anyone feeling a little confused..... but yes thats right, we've changed again. We're still SRSS, but we've now applied for a Charity Status and are awaiting updates.
In the meantime, Im proud that we've got a leaflet working for some many families and professionals and I say working for as such items cost money but in return, the leaflet is helping do the job intended. Furthermore, there are now two published Booklets 50+pages each helping parents with understanding and also to help protect themselves from those who dont yet understand. Our third book will be aimed at closing that gap.
Watch this space. We're growing quickly which is bitter sweet but with such numbers, awareness is growing too.
|Posted by Kay Mawson on March 18, 2017 at 10:10 AM||comments (0)|
We've changed who we are!
We were School phobia, Refusal with Seperation Anxiety. This has now changed to School Refusal Support Services.
Furthermore, im no longer alone. I have two amazing parents who have joined the team. Beth & Rebecca, so check out the section headed "our team" and "our stories" to read about them.
We're also an official organisation known as an Unincorporated Organisation.
|Posted by Kay Mawson on February 27, 2016 at 1:05 PM||comments (0)|
Its not far from my Son's 17th Birthday so we've been thinking about him learning to drive. However, having looked last night on the DVLA website, Tourettes Syndrome is something that you need to tell the DVLA about. My son is so excited to learn to drive, but we dont know what barriers his condition may bring. Its sad to think that he's working his way through his life now, everything is positive. He's signed up for Sports College and I really dont want him to be halted in his positivity should he be told he's not allowed to learn to drive. Keep your fingers crossed.
|Posted by Kay Mawson on September 24, 2015 at 5:25 AM||comments (0)|
My son was back to school for two weeks when he had to endure two heavy talks about this year being GCSE Exam year. They then had their dinner cards removed as punishment for any child averaging Grade B or below. Dinner cards are used to leave the premises at lunch time so that they can have a good break outside the school and be treated as adults. This is far from asking children to focus on their Grades. This is a strive for the school to achieve A*s to look good on paper. My son has Tourette's Syndrome. When he is stressed, the tics increase to a flare up where he struggles. His tics are motor and affect him throughout his entire body. With stresses like this, he is likely to have a flare up. The school will not allow him to stay in school when its severe as he starts with Vocal Tics too. School behaving like this aren't going to allow him to remain stress free. They're going to enhance an expected level of stress. Ive told my son that Grade C or above, is what employers are looking for. He's achieving well above that but is still told by his school to try harder. Education has a lot to answer for.
|Posted by Kay Mawson on July 7, 2015 at 2:40 PM||comments (0)|
Thank you for everyones support with the epetition for School Refusal Children. I just wanted to update you and let you know what since the last government dissolved and new one into power, the epetition has been moved. Please visit and share by clicking the link/button below:
|Posted by Kay Mawson on March 27, 2015 at 1:55 PM||comments (0)|
As parents, we often wonder what is going on in our child's minds, how it feels, what they're experiencing and how can we help them. I was honoured and touched to receive an email from Ellie who is a 14 year old suffering with School Refusal. Much like other teens, she is struggling and much like other parents, so are hers. Ellie has created a Blog and discusses her experience with us all. This is an opportunity to have an insight for parents like myself who have spent so much time trying to speak with our children trying to get answers. Ellie has written her blog well and offers so much value to those still looking for answers.
Ellie contacted me through the 38Degrees e-petition (https://you.38degrees.org.uk/p/schoolrefusal) to help children in school. This has inspired her to share her story. She has also continue to help the campaign to which I truly thank her.
Please see Ellie's story VISIT
|Posted by Kay Mawson on March 23, 2015 at 5:55 AM||comments (0)|
If you're anything like me, then by now, you will have developed a career in 'Battling Schools'. If you are like me, you will be continuously let down, angered and dumbfounded by the way professionals voice their opinions without any sound evidence to make claims.
I; as a parent, and much like yourselves, have had to learn it for myself. I have had to research, read, buy books, talk to others to learn all about my sons issues. I have been faced with teachers comments about how my son picks and chooses to have his tics as if they're not real.
Here's the analogy I use:
Picture yourself at a wedding. Right in the middle of the ceremony, you have an itchy foot. This itch gets so bad that you start to feel uncomfortable.
However, It is not appropriate for you to take off your shoe and sock and start scratching your foot i.e. embarassed to do this behaviour, so what do you do? How do you feel? Does your concentration drift away from the ceremony? Does the sense of the build up of this itch become worse? Have you even noticed he kissed the bride?
Suddendly the wedding it over and there's an opportunity to nip to a side room or toilet. Do you then scratch your foot gently as you would've done in the wedding or do you end up scratching twice as hard and for longer?
Hopefully, you now understand where Im going with this. With Tourettes Syndrome, the person can hold off having a tic as embarassment, timing and attention would cause a situation shall we say. The more the person holds off, the more uncomfortable the urge becomes and this can also cause pain. My son will often complain about such pain. When the person can get to a place of 'safety' and feel secure, they can release the tics but these tend to be in the form of a cluster. All the missed tics add up and still need releasing but its explosive. Ive read that some parents are told by teachers theres nothing wrong with their child as their child holds off all day long, only to return home and explode.
We've had a teacher in school who has hounded the life out of us over the past four years with his opinions and judgements about what 'he thinks' is happening. To hear his mythical take on it is offensive and angers me. Why do none of these teachers just Google the condition and spend 5 minutes reading? If this was done, the teachers would see that tics arent the only problem Tourettes Syndrome brings.
I hope that this post has help someone out there to have a better understanding or a way to advise the school.
|Posted by Kay Mawson on November 18, 2014 at 1:50 PM||comments (0)|
It is official that my son has now been given a diagnosis of Tourettes Syndrome with motor tics.
He's suffering but still gets on with things every day.
After this diagnosis, my mind has constantly been pecked at by an invisible woodpecker as things are starting to click into place. I feel it is important to 'unveil' my thoughts about what I feel is starting to become clearer in my eyes and is possibly a growing opportunity for future research. It seems from my years talking to parents of children suffering like my son did, that School Phobia, Refusal, Anxieties and so on "may" be co-morbities to something else. I say this as my son has suffered with Psychogenic Non-Epileptic Seizures - a part of the Tourettes Syndrome and has now been diagnosed with official Tourettes Syndrome after developing severe tics and tremors with minor vocals. Having read about Tourettes Syndrome, it was interesting to learn that Anxiety, mood disorders, OCDs, aggression and anger and more, were comorbid to TS. It seems that my son was pre-disposed to his many problems as he was born with TS. We just didn't have things in the right order to solve the puzzle faster. Having nearly 1,000 members on the Facebook Group page has also resulted in many parents discussing their child's School Refusal issues, but they always seem to have other cormorbidities accompanying it. Please remember, that these are my ideas and thoughts and I ask that you ask a physician further questions and/or do some research yourself. Only you know your child, inside and out.
|Posted by Kay Mawson on July 3, 2014 at 12:25 AM||comments (0)|
Three to four weeks ago my son started with a nervous tic after weeks of being bullied. The child in question has a group of Allies that did things like, crush biscuits in my Son's school back, access his bag and empty his aresole, read his diary and kick it around the room, make him stand whilst they fired elastic bands in his face, talked over him when ever he wanted to speak and more. My son was asked to document this information which he did. The bullying continued. They accessed his bag, read is record of bullying events and would snigger whilst repeating quotations from his record back to him in silly voices. My son visited his Head of House and the boy in question was there too. He manipulated the entire meeting making it appear that him and my son were friends the entire time, even patting him on the leg. However, when this ring leader went to leave, he glaced back at my son, giving him "the look". My son knew it wasnt over. It continued and the nervous tic appeared.
I spoke to the school which had triggered this first meeting with the Head of House but after it continued, I then visited the school and demanded to see someone about "bullying". I met with the assistant head who told me she had 5 mintues to spare and I assured her that was all i needed. I told her about the bullying events, the manipulation in the meeting with the head of house, that the bullying had continued and that my son had developed a nervous tic. She assured me this would be handled. Another incident occured.
I rang about this incident. Nothing happended about it. Another incident occured. I pulled up outside the school gates to see the assistance head on bus duty. She told me then that she had received my message and i told her there was this further incident too. She wanted to see my son first thing in the morning for a full report/chat about the past incidents.
My son visted the Assistant Head to chat about the past incidents with the bully. Following this, we think the bully was spoken to as he avoided contact with my son. However, my sons tic became worse that weekend, and on the Sunday, he began to tremor. As the day went on, his tremors got worse. At each stage, I videos these.
I telephoned the school Monday to say that my Son couldnt come to school because he was worse again on the morning. School wanted to see us. We arrived and waited in reception and the assistant head walked in to be met by us waiting. She stopped and stared and was completely shocked and stunned by the poor state Andrew was in. She told us she would be right back. The head of house was on his way too. When they arrived, we were ushered into the Chapel for them to stare in shock at my son. The assistant head then asked my son wait in the car.
My son waited in the car whilst we discussed the past weeks and bullying. The assistant head offered her opinion that the tremors were puberty which I shot down as nonsense. I advised them that my son was due to see the GP later that day and there had been discussions of using diazepam. They both gave negative opinions on this. I advised that my son had had Tourettes before and my thoughts were that it had returned under the stress of Bullying. I told them the evidence was there, that he had grown worse as sunday progressed. Also that my son had suffered problems since he was 9 so it was hardly puberty. I felt that this suggestion was a way to defend their lack of action or taking the bullying seriously.
My son has been absent for two weeks now. He is being tested for Wilsons Disease and is taking Risperidone which 'was' having an effect on him until yesterday when we saw the tremors creeping back up in their numbers. The dose has been doubled. We have also been told that the bully is mimicking my son's tremors at school infront of my Daughter, which she has taken badly. I have yet again, rang the school to report this incident and requested feedback to their action. My son is angry, hurt and let down that the bullying is continuing and hes not even there.